So a loved one has an SCI...
Welcome. You are likely scared, confused, and desperate to help. That is normal.
This section is designed to teach you the language of Spinal Cord Injury so you can stop guessing and start being an effective ally.
The Golden Rules of Support
It’s awkward at first. Here is how to navigate the new social dynamic.
Don't Touch the Chair
The wheelchair is an extension of their body. Leaning on it is like leaning on their shoulder. Never push them without asking first (it steals their agency).
The 3x Rule
Everything takes 3 times longer now. Getting dressed, eating, getting in the car. Do not rush them. Your patience reduces their anxiety.
Be the "Scout"
Don't ask "Is it accessible?" (People will lie and say yes). Go look yourself. Check the bathroom. Check the steps. Be the advance team.
How to "Scout" a Location
If you are planning a dinner or event, use this checklist before you invite them. Nothing is worse than arriving and realizing you can't use the bathroom.
- The Entrance: Is there a step? Even one step (2-3 inches) stops a power chair.
- The Door Width: Standard doors are 30-32". Power chairs need 28" minimum.
- The Bathroom: Can the door close with the wheelchair inside? Are there grab bars?
- The Tables: Are they high tops? (Hard to interact). Are they booths? (Impossible to use). Look for standard tables with removable chairs.